EBS Patient Support Meeting Nov 2014

Monday, November 17, 2014

Researchers from DGEM, along with other Epidermolysis Bullosa Simplex (EBS) experts, participated in a patient support meeting at Wokefield Park, Reading.

The day brought together experts in the field of EBS from the scientific community along with clinical and nursing expertise to provide a platform for patients and families to learn more about their condition, hear the latest research into therapeutics as well as update-to-date care and treatment plans.  The day was very well received by the participants and all were eager to quiz the experts, with open discussions flowing.  Not only did the patients and families receive valuable information but also the experts gained insight into the problems that the patients are faced with on a daily basis.